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Post by J'aii-Gun Jiinn on Sept 17, 2007 18:51:02 GMT -5
I pray for the best Cor!
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Post by Leda EmBorr on Sept 17, 2007 22:55:33 GMT -5
He will be in my thoughts.
Olivier used to take prednisone for Crones disease.... it made him nauseous all the time. It messed up his mood too.
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Post by acalsohei on Sept 18, 2007 0:16:37 GMT -5
You are both in my thoughts, Cor.
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JediKai
Message Board Member
TJA Savior
Posts: 5,560
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Post by JediKai on Sept 18, 2007 0:39:19 GMT -5
Best wishes. You remain in my thoughts and meditations.
Oh, yes, prednisone...can mess with mood.
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Post by I Five on Sept 18, 2007 11:17:40 GMT -5
Best of wishes for you, nerf and your family Cor
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Post by Kryy Jacobi on Sept 18, 2007 22:27:34 GMT -5
Praying for wisdom for the doctors as they consider this procedure and/or other treatment...
And continued prayers for all of you! I'm glad you had the opportunity to "escape" a bit and come to Atlanta.
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Post by Jedimom/Cor-Al Gelkar on Jun 3, 2008 9:21:40 GMT -5
Nerf has really been bad the last month or so. Our family doc did some CT scans of lungs and sinuses and saw new lesions developing in his lungs and the old ones that have closed are now opening up again. He also has major inflammation in his nose/sinuses and frequesnt nosebleeds. Also the skin on his head/face is extremely sensitive, so much so that he cannot wear a hat.
So our family doc sent the report up to Ann Arbor and last Thursday (as soon as they got the report) they called for an emergency appt. on Friday. So I had to race around getting my work schedule figured out and getting the disks with his scans on them, etc. and we went up Friday.
We ended up staying over the weekend at his mom's house (1 1/2 hours away, but better than the 3 1/2 to 4-hour drive we have from here) because his pulmonologist (lung) wanted to see him as well on Monday.
The doc we saw on Friday wanted Mark to get a 'scope of his lungs with a biopsy to make sure there were no malignancies in the lesions that are now in his lungs. Today the lung dr. said he did not want to do a biopsy because he felt it was too risky in Mark's current breathing conditions. They are going to do a scope with a "washing" they use saline to wash the sides of his lungs and then extract the fluid to see if there are any infections or problems that way. He also feels that odds are pretty low ting that there are any malignancies and that it is probably his disease flaring anyways. They also took loads of blood both Friday and today for labs. So we will probably drive up Sunday sometime since the 'scope is so early in the morning. Then they are going to coordinate treatment with us by phone as much as we can so at least we won't have to drive up for a follow-up.
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Post by acalsohei on Jun 3, 2008 20:33:00 GMT -5
So sorry to hear about Nerf's recent developments. I hope all goes well at the next appointment, and I will keep you all in my meditations.
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JediKai
Message Board Member
TJA Savior
Posts: 5,560
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Post by JediKai on Jun 4, 2008 21:25:10 GMT -5
I am also very sorry to hear his disease has flared up. I will hold you in my thoughts.
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Post by Jan-Qui Coran on Jun 4, 2008 21:36:34 GMT -5
So sorry to hear about all of this. You & your family are in my prayers.
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Post by Nova Darklighter on Jun 6, 2008 5:09:03 GMT -5
Cor Al, I'll think very good thoughts for you both, hope that it calms down again. Blessings to you both and karm as well.
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Post by Jedimom/Cor-Al Gelkar on Jun 6, 2008 8:36:39 GMT -5
Spoke with the pulmonologist today. His labs came backsky-high for his disease (so high the results are pending as they want to doube-check). They also decided they ARE going to do a biopsy IF everything goes smothly while he's under the anesthesia. They will still do the washing too
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Post by Jan-Qui Coran on Jun 6, 2008 10:52:44 GMT -5
Praying for him & you.
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Post by Jedimom/Cor-Al Gelkar on Jun 17, 2008 21:50:02 GMT -5
Just a quick update to let you know that we got the results from Mark's scope. He does have an infection (probably caused by Celina's drinking water, no kidding) but there is no sign of cancer. YEA!!! The doc agrees that all symptoms are from his WG and will will get in contact with our other UM doc to see what meds might need to be changed. He also put Mark on levaquin to hopefully get rid of the infection
More later when we hear more
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Post by J'aii-Gun Jiinn on Jun 18, 2008 5:28:44 GMT -5
Mang in there Master.You and your family have been on my prayer list
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